Polycystic Kidneys

Polycystic Kidney Disease Diet: How to Use It to Your Advantage
As of today, it is very unfortunate that there still is no cure that has been discovered for the dreaded polycystic kidney disease. This disease is also known as PKD for short; and fortunately, the kind of food that one resolves to be eating greatly determines the progress of this kidney-wasting disease. A polycystic kidney disease diet, also known to a lot of people as a renal diet, is the best natural treatment that anybody can find for this dilemma.

It goes a long way to greatly delaying a kidney dialysis even up to your late fifties.
The secret to a polycystic kidney disease diet is to begin it as early as possible. For example, if you think that the PKD gene runs in your family, then you should not hesitate to get on the diet immediately. It does not matter whether or not the symptoms of the condition have begun to manifest themselves or not.

If you have just been diagnosed with the PKD or you have a suspicion that the PKD gene runs in your family, then the best immediate action to take would be to go and see a professional nutritionist. Professional nutritionists will easily guide you as to what kinds of foods should go into your renal diet and which ones you should totally avoid. Just knowing which foods you should eat or not is not going to be sufficient in treating your PKD condition enough to delay dialysis or even worse, a kidney transplant; you will need to do a lot of planning and even more dedication to the already-decided-upon diet. It will be hard, but the rewards of sticking to this diet will greatly outweigh the effort put into it.

Frequently Asked Questions

  1. QUESTION:
    polycystic kidneys?

    • ANSWER:
      http://www.google.com/search?hl=en&q=Polycystic+kidneys&btnG=Google+Search

  2. QUESTION:
    Can i work offshore on vessels and oil rigs with polycystic kidneys? i suffer no pain or problems and i am 26?
    I have had an interview and they thought i rocked but i want some definite details bout the medical side before they make the job offer and 2 weeks down the line during my medical i get canned.

    • ANSWER:
      The biggest concern for PKD patients is to keep good blood pressure control. If you check it often and it's not elevated then I don't think you'll have a problem. My 2 sisters and my brother all have PKD and have successfully worked many different jobs. Just as with anyone, eating well, exercising and keeping things in moderation you can do fine, as long as you really stay on top of elevated blood pressure. There are lots of other kidney patients and caregivers who can answer questions and give support on the message forum at http://www.ihatedialysis.com/forum/. Online discussions are a great way to connect with those with kidney disease. I wish you the best of luck.

  3. QUESTION:
    I have polycystic kidney disease and the pain that comes with it when the kidneys become enlarged.?
    I can not take NSAIDS, and dr's give me non-specific narcotic pain meds. While these make my head feel loosy goosy doesn't do much for my pain. I have read its basically nerve pain. is there meds for nerve pain?

    • ANSWER:
      I also suffered kidney disease,and have recieved a transplant,the pain you are suffering I feel for you- My Nephrologist didn't have to prescribe me anything due to me having a herniated disc and degenertive spine disease-I was already seeing a pain management doc-If what you are getting isn't working it will be hard to get it out of your Nephrologist due to you are not able to get meds out of your system that easy due to your failing kidneys,but anyway what should work for you is Roxicodone 5mg-these do not have any Tylenol or Asprin in them just a narcotic(Oxycodone-same as Percocet) if you are already on Percocet since you are not sure what it is-look at the bottle,and e-mail me,and I can tell you what may best suit you-you may also e-mail me from this site,and i will give you my real e-mail adress if you need to talk about any issues concerning your kidney failure-been there and I know it's very hard and sometimes frustrating....Are you on Dyalisis yet???

  4. QUESTION:
    i have polycystic kidney desease im 36 and i thinkmy kidneys are failing what am i suppossed to do?
    i dont have insurance im a single mom i feel like my life is over i have children to raise i have all the symptoms but no one seems to think im sick except my mother who has had a transplant i dont want to tell her what im going through because she already blames herself forme having this disease

    • ANSWER:

  5. QUESTION:
    is there a link between polycystic overies & polycystic kidneys? ?
    just wondering i have pcos, just wondering if i have kidney failure to look forward to in later years!

    • ANSWER:
      Only in and of the fact that they are both essentially endocrine disorders. Having PCOS means there is a chance that you could develop PKD, but it is by no means a direct link or certainty.

      Polycystic kidney disease is a progressive, disorder of the kidneys. It is characterized by the presence of multiple cystshence, "polycystic" in both kidneys. There is a much higher link between genetic factors than developing it alongside other diseases.

      However with PCOS your kidneys have obviously been damaged and affected, just make sure you follow your treatment regime to the letter and look after yourself and your kidneys as best you can. Worry about other diseases only IF they pop up hun.

  6. QUESTION:
    What are the inheritance patterns for polycystic kidney inheritance?
    Two of my mother's brothers have polycystic kidneys, so I was wondering, is there any chance that I could have the kidney disorder too? Like it could have passed by my mom but I might have it? Just wondering, thanks. :)

    • ANSWER:
      Either or both parents can carry the gene. Carriers don't necessarily have it but can pass it on. If both parents have it, you are more likely to have PCKD.

  7. QUESTION:
    Are parapelvic cysts a sign of polycystic kidney disease?
    I've been diagnosed with having multiple parapelvic cysts on both kidneys. Is this a form of polycystic kidney disease?

    • ANSWER:
      Diagnostic criteria for PKD require two or more cysts in one kidney and at least one cyst in the contralateral kidney in young subjects, but four or more in subjects older than 60 years because of the increased frequency of benign simple cysts. Most often, the diagnosis is made from a positive family history and imaging studies showing large kidneys with multiple bilateral cysts and possibly liver cysts. Before the age of 30 years, CT scan or T2-weighted MRI is more sensitive for detecting presymptomatic disease because the sensitivity of ultrasound falls.
      Hope it helps.
      All the best!

  8. QUESTION:
    Can you inherit polycystic kidneys?
    My dad has it and I wonder if I can get it?

    • ANSWER:
      Yeah you can.

      it runs in families, you could just get kidney function tests assuming that you are older than 18 yrs unless you have kidney problems now as a teenager.

  9. QUESTION:
    is there any cure for polycystic kidneys?
    my daughter has had her cysts drained but dont know how long it will last there must be another treament

    • ANSWER:
      Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of numerous cysts in the kidneys. The cysts are filled with fluid. PKD cysts can slowly replace much of the mass of the kidneys, reducing kidney function and leading to kidney failure.

      The kidneys are two organs, each about the size of a fist, located in the upper part of a person's abdomen, toward the back. The kidneys filter wastes from the blood to form urine. They also regulate amounts of certain vital substances in the body.

      When PKD causes kidneys to fail—which usually happens after many years—the patient requires dialysis or kidney transplantation. About one-half of people with the major type of PKD progress to kidney failure, also called end-stage renal disease (ESRD).

      PKD can cause cysts in the liver and problems in other organs, such as the heart and blood vessels in the brain. These complications help doctors distinguish PKD from the usually harmless "simple" cysts that often form in the kidneys in later years of life.

      In the United States, about 500,000 people have PKD, and it is the fourth leading cause of kidney failure.

  10. QUESTION:
    What can't I eat/drink if I have Polycystic Kidney Disease?
    I went to the ER with bad back pain and lower abdominal pain. They did a CT scan and found a couple of kidney stones and multiple cysts on both kidneys. The ER Doc and Radiologist both thought it was polycystic kidney disease, but I don't have an appointment with the Urologist for another month and a half. Does anyone know of any guidelines I should follow in the meantime?

    • ANSWER:
      I googled it and got one site that said "low salt diet" (salt retains water and fluid is in the cysts).
      https://health.google.com/health/ref/Polycystic+kidney+disease

      I too, wonder why they didn't fix you there or admit you to the hospital since you were having severe pain. Maybe you don't have insurance so they just did as little as they could to help you? It is bad what hospitals are doing nowaday to people without insurance. I am glad Obama and congress got this new law passed to help everyone get insurance, even if it is not a perfect bill. I think you should get a lawyer and sue the hospital if you have an emergency with this before the urologist appointment. But if it gets bad, call the urologist and see if they can bump the appointment up sooner. Hopefully they gave you enough pain meds to last until your urologist appointment in one month. If not, I would call the ER and ask to speak to a supervisor and complain about the service you got and insist they give you enough pain meds to last until your appointment.

  11. QUESTION:
    Anyone know anyhting about Polycystic Kidneys?
    Are there any long term effects or health concerns?

    My wife has the condition her only medical treatment seems to be a variety of doctors poking her sending her for scans and saying you have polyscystic kidneys and doing nothing else. This process just seems to be repeated periodically.

    Any advice or suggestions.

    • ANSWER:
      Sorry to hear about your wife. I hope her condition progresses slowly.

      There's really nothing that can be done about polycystic kidney disease, except to monitor kidney function. Eventually, she will probably need a transplant, and will end up on dialysis.

      On the bright side, people can go for years with the condition before it starts causing problems. I hope that's the case for you guys.

  12. QUESTION:
    Does anyone else have a baby with polycystic kidney disease? If so how is the baby doing?
    I am 7 months pregnant with my fist child and I have recently found out that my little girl has polycystic kidney diesase, the doc told me there is a possibility she could be fine and there is a possibility she couldn't be. I was wondering if anyone else has had and experience with this also?

    • ANSWER:
      my friends son had it, she found out at her 20 weeks scan, her son lived for 10 days, i am really sorry to hear your child has this, my friends son was born in 1997 so i'm sure that a lot more is known about the condition now and my prayers are with you

  13. QUESTION:
    Is it possible child has polycystic kidney but the child father does not carry the disease?
    they diagnosis for my son, aged 5 years how kidney disease(polycystic) , but my husband did not carry the disease.the mother of the Grandfather carry the disease. So could my child carry the disease or the diagnosis is wrong ?
    add info:
    I did not have the disease and i do an ultrasound

    • ANSWER:
      My understanding is that the genetics depends on the type of polycystic kidney disease.

      'Autosomal dominant PKD is the most common inherited disorder of the kidneys. The phrase "autosomal dominant" means that if one parent has the disease, there is a 50 percent chance that the disease gene will pass to a child. In some cases-perhaps 10 percent-autosomal dominant PKD occurs spontaneously in patients. In these cases, neither of the parents carries a copy of the disease gene.'

      and

      'Autosomal recessive PKD is caused by a mutation in the autosomal recessive PKD gene, called PKHD1. Other genes for the disease might exist but have not yet been discovered by scientists. We all carry two copies of every gene. Parents who do not have PKD can have a child with the disease if both parents carry one copy of the abnormal gene and both pass that gene copy to their baby. The chance of the child having autosomal recessive PKD when both parents carry the abnormal gene is 25 percent. If only one parent carries the abnormal gene, the baby cannot get autosomal recessive PKD but could ultimately pass the abnormal gene to his or her children.'

      --http://kidney.niddk.nih.gov/kudiseases/pubs/polycystic/

  14. QUESTION:
    What things are tested when finding a donor match, besides blood type? Specifically kidneys?
    My fiancee has Polycystic kidney disease and received a kidney from his step-father 2 years ago. I believe that there are 6 points in determining a match - I also know that his step-father was a 4 out of 6 match and that his blood type was the main reason he was able to donate. But what are the other "points" that are tested?

    • ANSWER:
      Tissue Typing is another, however this URL should help you:

      http://www.usckidneytransplant.org/patientguide/pretransplantevaluation.html

  15. QUESTION:
    I have polycystic kidney disease, when will i need a transplant by if i was diagnosed at 10 and now am 18?
    Hi i am a 18 year old female with polycystic kidney disease ! i was wondering if anyone knew about this disease and what could happen to someone with it? would i need a transplant in the near future if i was diagnosed at 10 ?

    • ANSWER:
      I'm 17 and was diagnosed when I was nine.
      Live about your life like you usually would, but there are a few things you need to watch out for.
      Avoid things that involve jumping around, for example, I used to do trampoline gymnastics and horse back riding, I had to stop because the up and down motions make the cysts grow.
      Salty foods. avoid those.
      And just remember to keep a good diet, be healthy. And if you were given any medication from your doctor, then TAKE IT. I had blood pressure problems too so they gave me a pill to take, and I really don't like taking pills, so i didn't take it. But apparently I just found out that if I DO take the pill it ll elongate the life of my kidneys. pretty much I'm keeping myself alive longer if i take it.
      Don't worry about transplants unless your kidneys are really bad and are full of cysts. Just keep it monitored. ex: i go to the hospital every 6 months for ultrasounds on my kidneys to check the cysts, and see if they grew/or there are any new ones.

      hope this helped :) peace and love!!

  16. QUESTION:
    Can a man with Polycystic Kidney Disease have children?
    I am a 21 year old guy that was diagnosed with Polycystic Kidney Disease when I was 19. I would like to have children someday, probably in the next 5 - 10 years. Will the disease cause infertility and stop me from being able to have children?
    Thank you for responding to my question. Yes, my father has PKD.

    • ANSWER:
      You can have children but the disease won't necessarily be inherited by your children but it puts them at risk. My father and grand father had kidney disease but neither me or my brother inherited it.

  17. QUESTION:
    can you drink alcohol if you have polycystic kidney disease?
    If you have a polycystic kidney disease, can you drink alcohol or smoke sheesha or a cigarette?

    • ANSWER:

  18. QUESTION:
    is polycystic kidney disease the same as polycystitis?
    my mom may have polycystic kidney disease. we found out that people in our family have died of polycystitis and we want to know if they are the same thing or if they have anything in common. does anyone know?

    • ANSWER:

  19. QUESTION:
    My brother has polycystic kidneys. It runs in our family. My mother died from them.?
    He has asked me to consider donating a kidney. I have completed the frist blood work, typing and we have compatible types. I have a daughter and grand-daughter as well.
    I was told that if I didn't carry the gene I could donate. Upon considering this; Am I being selfish to say no to my brother if there is a chance that my daughter or grand-daughter may need a kidney since it runs in the family?

    • ANSWER:
      That is a tough question! And unfortunately one only you must answer. All I can do is give an opinion.

      First, I want to commend you for trying to see into the futures of your daughter and grandchild and wanting them to have long healthy lives.

      You didn't state if you actually carried the gene for polycystic kidneys. I've read that if one of your parents have PKD each child has a 50% chance of carrying and developing the disease. Pregnant women with PKD will have problems. If this did not occur with your pregnancy, chances are good that your daughter does not have the disease. If you don't carry that gene, chances are, your daughter and granddaughter do not carry that gene.

      One of the ways they check for PDK is a sonogram. From personal experience of sonograms, that test is easy, it's simple and relatively quick. I got to watch while they checked my kidneys. It is such a relief to know. PKD generally "hits" around middle age and again in the 60 year old range. If you are an older person, will you still be around when she reaches middle age?

      If you do carry that gene, not only can you not donate to your brother, you cannot donate to your offspring.

      I'm sorry I could not give you a definitive answer. There are none at this point. More testing is needed.

      This is a difficult time. Good Luck in testing.

  20. QUESTION:
    i have polycystic kidneys?
    what the hell do i have to expect from this disease. no one will tell me, not even my doctor, what symptoms i will experience later in life. i am only 20 and just have high blood pressure. what is going to happen to me?

    • ANSWER:
      This just means you have cysts (fluid filled sacs) on/in your kidneys. This really isn't a disease, just a condition. Don't sweat it, I have had them for years and not a big deal. If you feel any difference (increasing pain) tell your doctor.

  21. QUESTION:
    Is polycystic kidney disease a death sentence for a cat?
    My vet suspects this of my Persian who has been losing a considerable amount of weight lately. He is trying 24 hrs of IV fluids and if he doesn't perk up, he said we should consider putting him down. Has anyone else had a similar experience. We are devastated at the thought of losing this wonderful pet.
    I am well able to do a web search. I was hoping some people would answer with personal experiences with cats with this affliction.

    • ANSWER:
      Polycystic kidney disease is not a death sentence for a cat. Some positive cats can have long life. It depands on how bad the kidney failure is and what % of the kidney is still functioning. A friend of mine had a persian male who was positive by DNA but the kidneys were normal and showed no symptoms of the disease. Unfortunately when it is bad and the kidneys are not functioning any more there is nothing much you can do to help your cat.

  22. QUESTION:
    Question about Polycystic Kidneys(PKD)?
    I heard that once the cyst fully grows the person needs a new kidney or go on dialysis, if we only need 1 kidney, why can't they just take out the kidney with cys on it without the person having to wait for a donor or go on dialysis?

    • ANSWER:
      It is characterized by the presence of cysts in BOTH kidneys, that is why. Approximately 50% of patients with PKD have end-stage renal disease (ESRD) by the age of 60.

  23. QUESTION:
    Does anyone know if the MTHFR mutation has been linked to polycystic kidney disease?
    Or if there have been any research done along those lines?

    • ANSWER:
      I don't know for certain but I have never heard it is. I have MTHFR and read lots about it. My parents each have one copy of the mutation and do not have polycystic kidney disease.

      I read online that "Researchers have identified two genes associated with" PKD. I assume they are not the same gene. http://www.mayoclinic.com/health/polycystic-kidney-disease/DS00245/DSECTION=causes

  24. QUESTION:
    Polycystic Kidney Disease is genetic, but why the twins are different?
    Sara and Tom are twins and Tom is the elder brother. Their parents have PKD, and Tom was passed this disease year’s ago. However, Sara is healthy. Why they are different?

    • ANSWER:
      If both parents suffer from this disease, the possibility that their children get this disease is 50%. According to related statistics, 40% patients don’t have obvious familial disease history, which implies that this kind of disease is potential and can’t arouse peoples’ attention. No matter how stubborn and concealed this disease is, there are still symptoms and manifestations.
      Some patients are born with polycystic mutator. However the process of Polycystic Kidney Disease does not start normally until patients are infected or stimulated by toxin. So preventing infection and avoid reaching toxin can help patients prevent Polycystic Kidney Disease effectively.
      So, the twins are different.

  25. QUESTION:
    My mum has polycystic kidney disease and i don't - its hereditry but will i still be a carrier?
    My sister has the disease so we knew that she will pass it on to her children 1 if not more -she has 3. But if i am a carrier will i pass it on to my children? Confusing i know but the doctors don't seem that keen to test the children although my sister and i were tested straight away! Thank you so much to anyone who knows or can point me in the right direction.

    • ANSWER:
      50 percent chance of developing it. Not tested for as there is nothing that can be done anyways.
      Not always genetically based.
      50 percent chance of passing it on to your children if you are a carrier.

      You can be tested to see if you are a carrier now. Some carriers choose not to have children.
      See a geneticist for counselling.

      http://health.lifestyle.yahoo.ca/condition_info_details.asp?disease_id=261

  26. QUESTION:
    Does anyone have any information on how to live more comfortably with polycystic kidney disease?
    My dad has been suffering from PKD for about 5 years now.Even the pain meds aren't helping him with the pain.He is unable to work due to the pain that he is in, and no one wants to hire someone to drive trucks who are taking pain meds.He has been so depressed, thinking he has let my mom down because he hasn't had any income coming in to help with the bills.He has tryed for disability but is having a hard time getting signed up for it. Is there any relief for this pain that he is in daily?What can he do to live in less pain?

    • ANSWER:
      I also have PKD and I am stage 5 (dialysis will start soon) I have found that a strict diet that restricts protein (30 gm./day) and phosphorous is helpful. I avoid foods like nuts, seeds, all dairy products, whole grains, bananas, and citrus fruit. Beer is one of the worst offenders. One must be careful not to become anemic by using high iron substitutions (like blackstrap molasses for sugar) I have also been advised to avoid being shaken ( no bicycle riding, horseback riding or long bumby car rides)

  27. QUESTION:
    How can I find out if I have PKD(polycystic kidney disease) without the expensive genetic testing?
    For about 11 years I've had a cyst in my right kidney causing it to enlarge and a liver cyst that was once drained during my gallbladder removal a few years ago.The liver cyst has filled again and my kidney cyst causes severe pain daily.Over the years,I've had ct scans,mri's and sonograms to keep track of how large my kidney has grown.2 out of 3 doctor's(including a nephrologist from the Kidney foundation)suggests I have PKD and has told me that I now need to undergo genetic testing to verify this.I have no health insurance and there is only one income in my household.Due to the daily pain,I am so limited to activities that I can do with my two children.We are so stressed that we cannot get an answer from these "specialist" and can no longer afford any more testing or ER visits.I feel like I am alone.How can i get a diagnosis when i can not afford the testing?I've been to the"sliding scale fee" clinics(they say my husband makes too much money but fail to realise we pay bills with it).

    • ANSWER:
      Currently there is no cure for PKD, not with conventional medicine or (despite what you have been told) alternative medicine.

      Ultrasound (sonogram) is usually used to diagnose this especially when the cysts are active. Genetic testing confirms the diagnosis. CTs & MRIs can be used but are not ususally required. The extra imaging you have had may have been redundant and unneccessary. For now, get a hold of all your films, reports and labs -- you will need them. The main concern at this time is to prevent or control pain, high blood pressure and UTIs and well as find help.

      You may want to contact the Kidney Foundation and see what they suggest. Call to get an 800 number and check their website. They may have programs for someone in your situation, programs that will give you immediate help.

      My hope is that you can avoid ESRD (end-stage renal disease), kidney failure and transplant.

      I'm not certain if you are eligible for Disability or Supplemental Security Income benefits through the Social Security Administration but it's something to investigate. You would need the medical information I suggested you acquire and any written physician statements you can get concerning the probable diagnosis. If I am able to find additional help for you, a grant perhaps, I will contact you if I'm able.

      God bless you and your family. You're in a very frustrating position but I'm sure there are others who will try to help. You're not alone!

  28. QUESTION:
    How would I go about getting a genetic test for Polycystic Kidney Disease (PKD)?
    My mum and my grandad have both had it, and have had to be put on dialysis for treatment. My mum has always been against me being tested as she believes its putting a timeline on your life.
    However, I really want to know if i have it.
    I'm 18 now, but I'm unsure of how to actually get tested, as in where do I go?
    Any help would be appreciated.
    Thanks.

    • ANSWER:
      Blessings .....
      Just go to your doctor, talk to him/her about your history and ask if there is a test to be done to find out whether or not you are a candidate.

      Take care.
      Rhapsody at www.rappingonamleody.blogspot.com

  29. QUESTION:
    How is Polycystic Kidney Disease inherited?
    and is it a dominant trait, a recessive trait, or incomplete dominence?

    • ANSWER:
      ADPKD: Because PKD is an inherited disorder, the dominant form of the disease (ADPKD) is passed from one generation to the next by an affected parent. An ADPKD parent has a 50% chance of passing the PKD mutation to each of his/her children at conception - having a child who inherits ADPKD with each pregnancy, no matter how many children a person has. In some families, all the children are affected; in other families, none are. Many families with multiple children will have affected and unaffected children. Although most individuals with ADPKD have a family history, scientists have also discovered that approximately 10-20 percent of the PKD patient community became affected through spontaneous mutation.

      Two genes that cause ADPKD have been identified. About 85% of people with ADPKD have mutations in the PKD1 gene, located on chromosome 16. The remaining 15% of individuals have mutations in the PKD2 gene located on chromosome 4. There are no other PKD genes that have been identified to date.

      The disease caused by ADPKD1 is more severe than that caused by ADPKD2. Individuals with mutations in the PKD1 gene develop cysts, hypertension and loss of kidney function at an earlier age compared to the ADPKD2 gene.

      ARPKD: This recessive disease requires a mutated gene from each parent for the disease to manifest in a child, who has, then, 2 mutated genes. In most cases, there is no family history of the disease, and the parents do not have the disease themselves but are carriers.

  30. QUESTION:
    Has anyone heard of a baby with one Polycystic kidney?
    I was wondering if anyone knows anything about it. If so let me know. Thanks.

    • ANSWER:
      It is possible that the other kidney just hasn't developed cysts yet. Good luck.

  31. QUESTION:
    Does anyone know about polycystic kidney disease?
    My husband has just been diagnosed with PKD. We are both devastated and have been petrified by what we have read on the web. He is only 46 and has no symptoms at the moment other than high blood pressure which is being treated. I am so desperately afraid of this diagnosis.

    • ANSWER:
      If you want true information about this PKD disease, this is the best site for honest information...
      They also have doctor videos on this site to
      look at and learn more about this disease.
      http://www.pkdcure.org/
      (If Kidney transplant is in his future...watch the Video here by doctor Robert Montgomery...he is a World Reknown Transplant Surgeon at
      Johns Hopkins Hospital in Baltimore, MD.)

      There is a group for those who need or may need to have a Kidney transplant...it is free
      to join and post; Other here have PKD and
      may be able to help you:
      http://health.groups.yahoo.com/group/kidney_transplants/?yguid=40163860

      Here is a patients guide to kidney transplantation
      put out by one of the many Transplant Centers:
      http://www.usckidneytransplant.org/patientguide/
      You will learn about when a patient may need
      a transplant, about his lab tests, and other things
      also.

  32. QUESTION:
    What is the best solutions for the polycystic kidney disease kidney enlarge very big?

    • ANSWER:
      my dad died from it at 24 years old my sister is in her late fourtys and has it and is very sick in and out of N STAGE hopefully you are going to the right docs and are on the transplant list this is a very dangerous thing little cyst break away and attach to your other organs causing various other illnesses you can contact the national kidney hot line for all the info you need good luck

  33. QUESTION:
    Has anyone ever heard of Polycystic Kidney Disease? Is there an effective way to manage the pain?

    • ANSWER:
      It appears that no analgesics can be used with impunity. Codeine and other narcotics can lead to dependency or addiction. Non-steroidal anti-inflammatory agents (aspirin, ibuprofen, naproxyn and several more with trade names such as Advil, Nuprin, Naprosyn, Motrin, etc.) can reduce the flow of blood through the kidneys and aggravate high blood pressure - so PKD patients should NOT take these medications. Acetaminophen can probably be used in small doses for short
      periods of time without injuring the kidneys, but patients with chronic, severe pain may have to consult a specialized pain clinic in order to consider alternative types of treatment.

      There have been some exciting preliminary results in the use of laparoscopic surgery to “unroof” cysts (also called de-roofing) and thereby reduce pain in ADPKD patients. Laparoscopic surgery is similar to arthroscopic surgery in that only a very small incision is necessary for the procedure, and the surgical recovery time and scarring are much reduced. This procedure is conducted only in patients whose symptoms strongly suggest that their pain is caused by the cysts, and who have cysts larger than five millimeters in diameter. This procedure is only to reduce pain, not to preserve kidney function.

  34. QUESTION:
    Which army regulation covers disqualifying conditions for deployment pertaining to Polycystic kidney disease?
    My unit is currently on orders for deployment. I'm not afraid to go, I knew there was a chance when I enlisted. I have Autosomol Dominant Polycystic Kidney Disease (ADPKD). I'm just wandering what kind of treatment will be available in Iraq? I was diagnosed with it in 2000. My mom and her siblings have it. My Aunt and Uncle are currently undergoing dyalisys for their ADKPD.

    • ANSWER:
      You will have to ask the Army medical staff - if you remind them that you have it they can look up the regs.

      It might not disqualify you at all if it's not severe or if the treatment is not complicated.

  35. QUESTION:
    how many people with polycystic kidney disease are here?
    i just wanted to take a little poll, sometimes it feels like there's no one who understands. so if you have PKD ( poly-cystic kidney disease) say hi, it's been in my family for quite a while and im always curious to see who else can relate.

    • ANSWER:
      Hi! Yep! I have it too!

      It's a bit of a nightmare isn't it? My mom had it, and me and my brother and two sisters all have it. My sisters kids seemed to have escaped though, so that's a relief.

      If you look at the statistics, it's horrifyingly common. I was talking to a Doc at my hospital a few weeks ago. He's doing research into the genetics of it, and he was saying that they have identified the gene which causes it, but you can't genetically engineer it out yet. He was saying that some drugs are being trialled which halt the growth of the cysts and may stop the kidneys failing. I guess it depends on how far the disease has progressed on how effective they will be. There is some great research going on though and I have big hopes for the future.

      Ten percent of all cases mutate spontaneously. The disease occurs in an individual who has no family history of the disease That must be a real nightmare mustn't it?!?! At least when all four of us have it, we can rely on each other for support and information.

      What stage are you at? Some people have the disease but it doesn't progress to End stage renal failure. Hopefully you are one of them!

      I have done the whole dialysis thing and the transplant thing and I feel great now. It's not what you'd ever choose for yourself, to have this disease, but you've just got to not let it get you down - easier said than done though eh?

      Take care and try not to feel so alone, because you're definitely not.

      Regards

      Jo

  36. QUESTION:
    How do I take care of myself if I have polycystic kidney disease and also diabetic?

    • ANSWER:
      follow your doctor's recommendations, not ours.

  37. QUESTION:
    How can polycystic kidney disease be cured or alleviated?

    • ANSWER:
      I don't believe there is a cure for this disease. The person's symptoms are treated, and managed.

  38. QUESTION:
    Are hotpockets bad for me when I have Polycystic Kidney Disease?
    So...As the question above asks...Are hotpockets considerably bad for me since I have PKD? I'm not really sure what to watch out for, and I'm about to go off for college soon..and I want to make sure that my diet is safe(ish) to avoid Dialysis. Thanks in advance.

    • ANSWER:
      Hot pockets do not have anything in them that is specifically bad for PKD.

  39. QUESTION:
    What are the financial costs of Polycystic Kidney Disease (PKD)?
    I'm trying to find a financial breakdown of medical costs for PKD. Also, does anyone know how much it costs to insure someone with PKD?

    • ANSWER:
      I do not think any ins. company would insure you with PKD, as in self insured. Your best bet would get a job that offers group health ins. The larger the company, the better chances you have with getting the ins, you may have a year waiting period, but it would be worth it. In the first 3 stages, it is really easy, just keep you blood pressure down, do not become a diabetic, and keep away from any drinks and food with artificial sweetener it it. NO DIET DRINKS! I am in Stage 4 (severe) PKD. I have to see my doctor every 3 months, have blood tests every three months. Have a C/S once a year. You will also have to be tested for aneurysms in your brain from get go, because from your kidney's not filtering all the poisons out of you blood, this can cause aneurysms, I have one in my cavernous sinus behind my left eye, so you will need an MRA nor (MRI) every 3-5 years. My working kidney function is at 20 %, once I reach 15 % the next step is dialysis, that is where the MONEY starts adding up fast, but first you have to get a different Doctor to do a surgery to put a stent in your arm to hook up to the machine, then after that heals you go 3 times a week for dialysis. I do not know your age or what stage you are in, but it can take 15 to 20 years to start having symptoms. Also you can try disability, because you do have a disease that will never improve or never have a cure for, it only gets worse, and that is what disability was meant to be for. Good Luck, and yes it is very scary, Mary

  40. QUESTION:
    Does anyone have information regarding POLYCYSTIC KIDNEY DISEASE?
    What causes it, what are survival chances, where is the gene for it located?????

    • ANSWER:
      yea i know what it is but since its YOUR biology homework, im not helping!!!!!!!!!!!!!!!!!!!!

  41. QUESTION:
    Have polycystic kidney disease for 2 yrs, Can stem cell treat PKD?
    I have PKD 2 yrs ago. Cysts are growing with ages. Can SCT treat my disease?

    • ANSWER:
      Polycystic kidney disease affects the epithelial cells of the nephrons, the part of the kidney that filters urine. Once a cyst forms, it breaks away from the nephron and leaves a "scar" or fibrotic tissue. This scar becomes stiff and does not allow the urine to be filtered through that area. As PKD progresses, it gradually crowds out healthy kidney tissue from the cysts themselves and it damages the filtering portion of the kidneys to the extent that they are no longer able to do their job completely. At this point, over time, kidney function will continue to decline until the person reaches end stage renal disease.

      There are two types of PKD, PKD1 and PKD2. PKD1 affects approximately 80% of patients with PKD and PKD2 affects the remainder. There isn't any way to tell which type you have accept via genetic testing and time. Most people with PKD1 will develop renal failure by their 50's or 602's whereas patients with PKD2 may never develop end stage renal disease. Also, most patients with PKD2 aren't diagnosed until later in life and have fewer cysts.

      Stem cell therapy is not a viable option for PKD because the disease is caused by mutations in the genetic code and moreover, it takes second and sometimes third "hits" to activate the mutated gene. Scientist do not know why this process is so different amongst patients, even patients in the same family. The only aspect of stem cell research that would be beneficial to PKD patients is the future opportunity to clone our own kidneys for transplant, once the disease progresses to end stage renal disease.

      On the positive side, there have been some very promising studies regarding a drug called Tolvaptan, which has been demonstrated to slow the progression of the disease and possibly prevent patients from developing end stage renal disease. I'm sorry this wasn't the answer you were looking for, but I hope it helped.

  42. QUESTION:
    My doc says i have a few cysts on my kidney.Should i be concerned about Polycystic kidney disease?
    Is having multiple cysts normal?
    are multiple cysts normal or no?

    • ANSWER:
      Go to this website for your answers: http://kidney.niddk.nih.gov/kudiseases/pubs/polycystic/

  43. QUESTION:
    i'm 27 and i found out about a year that i have polycystic kidney disease. Is it ok for me to workout?
    I know that sooner or later my abdomen will be enlarged. Is there any way at all to prevent or slow it down?

    • ANSWER:
      It's always good to work out, but you might want to do low impact, make sure to lift weights, build muscle, it will only make you stronger. Drink plenty of water and when you are having sypmtoms, don't push yourself or overexert yourself ever. Just make sure to keep hydrated.

  44. QUESTION:
    what are the clinical findings of polycystic kidney disease?
    please give details informations about polycystic kidney disease.

    • ANSWER:
      Polycystic Kidney Disease is an autosomal recessive and autosomal dominant inherited disease. The symptoms are:
      1) Hypertension
      2) Fatigue
      3) Mild to severe back or flank pain (located just near or below the rib cage in the back)
      4) Frequent UTI's ( Urinary Tract Infections)
      This disease often leads to chronic renal failure and may result in total loss of kidney function. Dialysis is recommended .
      I hope this helps and here's a web:
      http://en.wikipedia.org/wiki/Polycystic_kidney_disease

  45. QUESTION:
    Know anything about polycystic kidney disease?
    I might have it and I'm really worried about what the results will be... please tell me what you know about it.. can you die from it?

    • ANSWER:
      Polycystic kidney disease is a disorder in which clusters of cysts develop primarily within your kidneys. Cysts are noncancerous (benign) round sacs of water-like fluid.

      Polycystic kidney disease isn't limited to only your kidneys, although the kidneys usually are the most severely affected organs. The disease can cause cysts to develop in your liver, pancreas, membranes that surround your brain and central nervous system, and seminal vesicles.

      The greatest risk for people with polycystic kidney disease is developing high blood pressure. Kidney failure also is common with polycystic kidney disease.

      Polycystic kidney disease affects more than 12 million people worldwide. The disease varies greatly in its severity, and some complications are preventable. Regular checkups can lead to treatments to reduce damage to your kidneys from complications, such as high blood pressure.

      Signs and symptoms

      Signs and symptoms of polycystic kidney disease may include:

      High blood pressure
      Back or side pain related to enlarged kidneys
      Abdominal pain
      Increase in the size of your abdomen
      Blood in your urine
      Kidney stones
      Kidney failure
      Kidney infections
      Headache

      Causes

      Cysts are noncancerous (benign), round sacs that contain water-like fluid. They vary in size from tiny sacs to sacs large enough to hold several quarts of fluid. Having one or more benign kidney cysts is common, especially in people older than 50. A benign, simple kidney cyst doesn't require treatment. And having one or more kidney cysts doesn't mean you have polycystic kidney disease.

      Abnormal genes cause polycystic kidney disease, and the genetic defects mean the disease runs in families. The disease has two types, caused by different genetic flaws:

      Autosomal dominant polycystic kidney disease (ADPKD). Signs and symptoms of this form often develop between the ages of 30 and 40. In the past, this type was called adult polycystic kidney disease, but in a small number of cases children do develop the disorder. Only one parent needs to have the disease in order for it to pass along to the children. If one parent has ADPKD, each child has a 50 percent chance of getting the disease. This form accounts for about 90 percent of cases of polycystic kidney disease.
      Autosomal recessive polycystic kidney disease (ARPKD). This form is far less common than ADPKD, occurring only in one in 20,000 births in the United States. The signs and symptoms often appear shortly after birth. Sometimes, symptoms don't appear until later in childhood or during adolescence. Both parents must have abnormal genes to pass on this form of the disease. If both parents carry the genes for this disorder, each child has a 25 percent chance of getting the disease.
      Research has identified two genes associated with ADPKD and one associated with ARPKD. Though it hasn't been identified, scientists suspect there is a third gene responsible for some forms of ADPKD.

      About one person in 10 with polycystic kidney disease has no family members with the disorder. In these cases, instead of inheriting a defective gene, the gene spontaneously mutates, causing polycystic kidney disease.

      A healthy kidney (left) eliminates waste from the blood and maintains the body's normal chemical balance. Fluid-filled sacs (right), called cysts, characterize autosomal dominant polycystic kidney disease.

      In an autosomal dominant disorder, the mutated gene is dominant, which means you only need one mutated gene to have the disorder. A person with an autosomal dominant disorder ? in this case, the father ? has a 50 percent chance of having an affected child with one mutated gene (dominant gene) and a 50 percent chance of having an unaffected child with two normal genes (recessive genes). These chances are the same in each pregnancy.

      In an autosomal recessive disorder, the mutated gene is recessive, which means it won't express its trait when paired with a normal, dominant gene. To have an autosomal recessive disorder, you inherit two mutated genes ? one from each parent. Most often, these disorders are passed on by two carriers. Their health is rarely affected, but they have one mutated gene (recessive gene) and one normal gene (dominant gene) for the condition. Two carriers have a 25 percent chance of having an unaffected child with two normal genes (left), a 50 percent chance of having an unaffected child who also is a carrier (middle), and a 25 percent chance of having an affected child with two recessive genes (right). These chances are the same in each pregnancy.

      When to seek medical advice

      It's not uncommon for people to have polycystic kidney disease for years without developing signs or symptoms and without knowing they have the disease. If you exhibit some of the signs and symptoms of polycystic kidney disease, which include high blood pressure, an increase in the size of your abdomen, blood in your urine, back or side pain, or kidney stones, see your doctor to determine what might be causing them. If you have a first-degree relative — parent, sibling or child — with ADPKD, see your doctor to discuss the pros and cons of screening for this disorder.

      Screening and diagnosis

      Several diagnostic methods are available to detect the size and number of cysts as well as to evaluate the amount of healthy kidney tissue.

      Ultrasound examination. This is the most commonly used diagnostic method. A wand-like device called a transducer is placed on your body. It emits inaudible sound waves that are reflected back to the transducer — like sonar. A computer translates those reflected sound waves into a moving image of your kidneys.
      Computerized tomography (CT) scan. As you lie on a movable table, you're guided into a big doughnut-shaped device that passes very thin X-ray beams through your body. Your doctor is able to see your kidneys in two-dimensional images.
      Magnetic resonance imaging (MRI) scan. As you lie inside a large cylinder, magnetic fields and radio waves generate cross-sectional views of your kidneys.
      Genetic testing. Gene linkage analysis involves special blood tests for you and for at least three family members who are known either to have or not to have polycystic kidney disease. Then, the results of your blood tests are compared with the results of the tests of your family members. Because this test is so expensive, it's often only used when one family member is considering donating a kidney to another family member.

      Complications

      High blood pressure is a common complication of polycystic kidney disease. Untreated, high blood pressure can cause further damage to your kidneys and increase your risk of heart disease and stroke.

      Loss of kidney function
      Progressive loss of kidney function is one of the most serious complications of polycystic kidney disease. Nearly half of those with the disease have kidney failure by age 60, and about 60 percent will have kidney failure by age 70. If you have high blood pressure or blood or protein in your urine, you have a greater risk of kidney failure.

      Polycystic kidney disease causes your kidneys to gradually lose their ability to eliminate wastes from your blood and maintain your body's balance of fluids and chemicals. As the cysts enlarge, they produce pressure and promote scarring in the normal, unaffected areas of your kidneys. These effects promote high blood pressure and interfere with the ability of your kidneys to keep wastes from building to toxic levels, a condition called uremia.

      As the disease worsens, end-stage kidney (renal) failure may result. When end-stage renal failure occurs, you'll need ongoing kidney dialysis or a transplant to prolong your life.

      Other complications of polycystic kidney disease may include:

      Pregnancy complications. Most women — up to 80 percent — with polycystic kidney disease can have an uneventful pregnancy. Others may develop a life-threatening disorder called preeclampsia. Those most at risk are women who have high blood pressure before they become pregnant.
      Growth of cysts in your liver. The likelihood of developing liver cysts for someone with polycystic kidney disease increases with age. About two-thirds of people with this disorder will develop liver cysts at some point in their lifetime. While both men and women develop cysts, women often develop larger cysts and get them at an earlier age. Cyst growth appears to be aided by female hormones. Liver cysts are more frequent in women who've been pregnant.
      Development of an aneurysm in your brain. Localized enlargement of an artery in your brain can cause a hemorrhage if it ruptures. Aneurysms tend to run in families and are present in between 5 percent and 10 percent of people with polycystic kidney disease.
      Heart valve abnormalities. Nearly one-quarter of adults with polycystic kidney disease develop mitral valve prolapse. When this happens, the valve no longer closes properly, which allows blood to leak backward.
      Colon problems. You may develop hernias, and pouches or sacs in the wall of the colon (diverticulosis).
      Chronic pain. Pain is a common symptom for people with polycystic kidney disease. It often occurs in your side or back.

      Treatment

      Treating polycystic kidney disease involves dealing with the following signs, symptoms and complications:

      High blood pressure. Controlling high blood pressure may delay the progression of the disease and slow further kidney damage. Combining a low-sodium, low-fat diet that's moderate in protein and calorie content along with eliminating smoking, increasing exercise and reducing stress may help control high blood pressure. However, medications are usually needed to control high blood pressure. The medications known as angiotensin-converting enzyme (ACE) inhibitors are frequently used for controlling high blood pressure in people with polycystic kidney disease.
      Pain. Chronic pain, usually located in your back or your side, is a common symptom of polycystic kidney disease. Often, the pain is mild and you can control it with over-the-counter medications containing acetaminophen. For some people, however, the pain is more severe and constant. In rare cases, your doctor may recommend surgery to remove cysts if they're large enough to cause pressure and pain.
      Complications of cysts. Rarely, when kidney cysts cause obstruction of other organs or veins, you may need to undergo surgery to drain the cysts.
      Bladder or kidney infections. Prompt treatment of infections with antibiotics is necessary to prevent kidney damage.
      Blood in the urine. You'll need to drink lots of fluids as soon as blood in the urine is noted, in order to dilute the urine. Dilution may help prevent obstructive clots from forming in your urinary tract. Bed rest also may help decrease the bleeding.
      Kidney failure. If your kidneys lose their ability to remove wastes and extra fluids from your blood, you'll eventually either need dialysis or a kidney transplant.
      Liver cysts. Nonsurgical management of liver cysts includes avoidance of hormone replacement therapy. Other options in rare cases include drainage of symptomatic cysts if they're not too numerous, partial removal of the liver or even liver transplantation.
      Aneurysms. If you have polycystic kidney disease and a family history of ruptured intracranial aneurysms, your doctor may recommend regular screening for intracranial aneurysms. If an aneurysm is discovered, surgical clipping of the aneurysm to reduce the risk of bleeding may be an option, depending on its size. Nonsurgical treatment of small aneurysms may involve controlling high blood pressure and high cholesterol and quitting smoking.

      Coping skills

      As is the case with other chronic illnesses, having polycystic kidney disease may make you feel overwhelmed or helpless. But you don't have to deal with your illness alone. The support of friends and family is important in dealing with a chronic illness. In addition, a counselor, a psychologist, a psychiatrist or a clergy member may be able to help.

      You may also want to consider joining a support group. Although support groups aren't for everyone, they can provide helpful information about treatments and coping. And being with people who understand what you're going through may make you feel less alone. Ask your doctor about support groups in your community.

  46. QUESTION:
    Has anyone had experience with their Persian Cat having polycystic kidney disease?

    • ANSWER:
      I had a white male Persian back in the mid-80's who had PKD. It was devastating going through the process with him. I probably will not be much help since this was many years ago but I can tell you what we did then if that helps. There was NOT a DNA test back then. My heart breaks for you. If you have any questions, pls. email.

  47. QUESTION:
    Is Whey Protein Bad for Your Kidneys?
    Is it hard on your kidneys to be taking whey protein often?

    From what I have read the answer is no.

    But, in my family on my fathers side there is a kidney disease that I have a 50% chance of getting. (polycystic kidney disease) If I take the whey protein will it increase my chances of getting this disease or not?

    thanks for any and all help. cheers.

    • ANSWER:
      It will not increase your chances of getting that disease

      Take whey protein before and after exercise, thats a safe dosage and is all you really need

  48. QUESTION:
    Autosomal Recessive Polycystic Kidney Disease?
    My 1 month old daughter has it. They thought she had polycystic kidney disease alone inherited from me and her kidneys were enlarged. She had surgery last week and got one kidney removed which is when they found that shes more likely to have autosomal recessive polycystic kidney disease. can anyone tell me what this is and whats likely to happen to my baby??

    • ANSWER:
      A diagnosis like this must be quite a shock. This disease usually reduces life expectancy, but the nature and severity of effects from this disease vary. The docs will be able to give you an assessment of her prognosis once they perform a few more tests.

      The primary risk from this disease is eventual kidney failure, which could occur in adolescence or early adulthood. Sometimes there are also problems with the liver. Most likely, even under the worst-case scenario, she will probably have a mostly normal childhood at least through her grade school years. Once kidney problems progress, dialysis will probably be needed.

      A kidney transplant could possibly be an option once the disease advances, and after a transplant, if it is successful, people lead normal lives.

  49. QUESTION:
    Does Polycystic Kidney Disease cause infertility?
    I am a 21 year old guy that was diagnosed with Polycystic Kidney Disease when I was 19. I would like to have children someday, probably in the next 5 - 10 years. Will the disease cause infertility and stop me from being able to have children?
    thanks for the help!

    • ANSWER:
      As a group, men with ADPKD do not experience a decrease in fertility. However, ADPKD can be associated with cysts in the male reproductive tract. These seminal vesicle cysts and epididymal cysts can cause infertility. Defects in sperm function have also been associated with ADPKD. Hence, if men with ADPKD concerned about fertility issues, they should consult an urologist to know some information in detail.

      Very best of luck.

      ** your very welcome.

  50. QUESTION:
    how to donate kidneys for research?
    I'm a Polycystic Kidney Disease patient and I'm applying for organ and tissue donation but I want to donate my kidneys to a foundation like this one for research, what can I do?
    I'm a Polycystic Kidney Disease patient and I'm applying for organ and tissue donation but I want to donate my kidneys to a foundation like the National Kidney Foundation for research, what can I do?

    • ANSWER:
      Talk with the doctor who treats you for this disease, also check with the National Kidney Association, they can all give you the necessary information.